Ethics and Genomics
ETHICS ADVISORY BOARD
Timothy Caulfield, LLM
Timothy Caulfield is a Canada Research Chair in Health Law and Policy and a Professor in the Faculty of Law and the School of Public Health at the University of Alberta. He was the Research Director of the Health Law Institute at the University of Alberta from 1993 to 2011 and is now leading the Faculty of Law’s Health Law and Science (HeaLS) Policy Group. Over the past several years, he has been involved in a variety of interdisciplinary research endeavours that have allowed him to publish over 200 articles and book chapters. He is a Health Senior Scholar with the Alberta Heritage Foundation for Medical Research, the Principal Investigator for a Genome Canada project on the regulation of genomic technologies, and an AllerGen Network project on ethics, evidence and health policy research, the Ethical, Legal and Social Issues theme leader for the Stem Cell Network and has several other projects funded by the Canadian Institutes of Health Research. Professor Caulfield is and has been involved with a number of national and international policy and research ethics committees, including Canadian Biotechnology Advisory Committee, Genome Canada’s Science Advisory Committee, and the Federal Panel on Research Ethics. He is a Fellow of the Royal Society of Canada and the Canadian Academy of Health Sciences. He teaches biotechnology in the Faculty of Law and is the editor for the Health Law Journal and Health Law Review.
Eric T. Juengst, Ph.D
Eric Juengst is an Associate Professor of Bioethics at the Case Western Reserve University School of Medicine in Cleveland, Ohio. He received his B.S. in Biology from the University of the South in 1978, and his Ph.D. in Philosophy from Georgetown University in 1985. He has taught bioethics and the philosophy of science on the faculties of the medical schools of the University of California, San Francisco and Penn State University. His research interests and publications have focused on the conceptual and ethical issues raised by new advances in human genetics and biotechnology, and from 1990 to 1994, he was the first Chief of the Ethical, Legal and Social Implications Branch of the National Center for Human Genome Research at the U.S. National Institutes of Health. He currently serves on the National Council for Human Genome Research at the National Institutes of Health, the Bioethics Advisory Committee for NASA, the National Ethics Committee of the March of Dimes, the Ethics Committee of the American Society for Human Gene Therapy, and the editorial boards of the Journal of Medicine and Philosophy, Human Gene Therapy, IRB:Ethics and Human Research, Medical Humanities Reviews, Community Genetics, and the Encyclopedia of Bioethics, 3rd Edition. He has previously served on the U.S. Recombinant DNA Advisory Committee, the DNA Advisory Board of the FBI, and the National Research Council's Committee on Human Genetic Variation Research.
Amy McGuire, JD, Ph.D.
Amy L. McGuire, J.D., Ph.D. is Associate Professor of Medicine and Medical Ethics and Associate Director of Research for the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Her research focuses on legal and ethical issues in genomics. She is currently studying participant attitudes toward genomic data sharing, investigators’ practices and perspectives on the return of genetic research results, ethical issues in human microbiome research, and ethical and policy issues related to the clinical integration of genomics. Her research is funded by the NIH-NHGRI and the Cancer Prevention and Research Institute of Texas.
Professor Mildred Cho, Ph.D
Mildred Cho is a Professor in the Division of Medical Genetics of the Department of Pediatrics at Stanford University, and Associate Director of the Stanford Center for Biomedical Ethics. She received her B.S. in Biology in 1984 from the Massachusetts Institute of Technology and her Ph.D. in 1992 from the Stanford University Department of Pharmacology. Her post-doctoral training was in Health Policy as a Pew Fellow at the Institute for Health Policy Studies at the University of California, San Francisco and at the Palo Alto VA Center for Health Care Evaluation. Before coming to Stanford, Dr. Cho was Assistant Professor of Bioethics in the Center for Bioethics and the Department of Molecular and Cellular Engineering at the University of Pennsylvania School of Medicine. She is a member of national advisory boards for the National Human Genome Research Institute, the American Association for the Advancement of Science Public Policy Directorate, and the Board of Reviewing Editors of Science magazine. She has also served as a member of the working group on synthetic genomes for the U.S. Department of Energy.
Dr. Cho's major areas of interest are the ethical and social impacts of genetic research and its applications, and how conflicts of interest affect the conduct of academic biomedical research. Her current research projects examine ethical and social issues in research on human genetic variation, stem cells, pharmacogenetics, bioinformatics, and bioweapons and microbial genome research.